Hazel has spent way more time in hospitals and undergoing tests than any two year old should ever have to. It started with seizures at four weeks old, then at one year old was diagnosed with a genetic mutation called MCAHS1. As far as we can tell, there are less than 10 – probably less than 5 – diagnosed in the United States; 22 in the world. It’s a very scary diagnosis with most children not living to adulthood. We’re glad you’re on this journey with us!